Uganda transplant revolution brings hope to thousands

 Uganda is considering legislation

which would make it possible to

perform organ transplants

in the country for the first time.

Such an accomplishment will

transform the life

of many Ugandan citizens

who are currently waiting on an

organ transplant.

Image Credit Google

Annita Twongyeirwe was never one to
think about her legacy. She always
dreamed

of living a healthy and independent

lifestyle, but when she found out three

years ago

that she had kidney failure, all that

changed. Now, Annita spends most of her

time either going

through dialysis or preparing for the

next session—her entire day revolves

around this machine

which is essentially performing her

kidneys’ function and cleaning her blood

from wastes

and excess fluids.

Every session takes about four hours

and she has to visit the hospital two

times a week.

In between sessions she spends most of

her time at home - with family or relatives -

helping

out around the house and watching over a

group chat for friends and donors who

give money every so often.

I was this ambitious girl. I wanted to be

someone's girlfriend or wife and live my

life

out like that but it doesn't work out

because all of my dreams are shattered.


A kidney transplant would allow them

to return home but the high cost of

surgery,

coupled with other factors such as travel

and medication, limits many people from

being able to do so.

Thousands of Ugandans are unable to

afford the procedure because a kidney

transplant can cost up to $30,000—

more than five times the average

household income in Uganda.

The Kiruddu National Referral Hospital is

the only public hospital that provides

treatment

for children who are deaf-blind in Uganda.

Many of these children come from far

away

to receive medical care, often travelling

for days.

However, these numbers are only a part of

those countrywide who live with kidney

failure

and in need of specialised care.

It's unnatural to leave everything for a job

when it may not last, Dr Daniel Kiggundu,

the only kidney specialist working at the

unit, explains in an interview with news


Kiruddu Hospital provides dialysis for
up to 60 patients per day and each patient
visits at

least twice a week


The ward is a noisy place, with its beeping

machines reverberating throughout.

Nurses

are bustling around dialysis stations,

seeing to patients who come here for

treatments.

Some patients drift off into sleep as they

wait; others stay awake and chat with

their nurses.

The clinic runs two shifts each day -

both of which take in about thirty people

at once -

so it often reaches its max capacity,

forcing the staff to work fast without any

spare time to prep them for treatments.

realised she was sick when her entire body

began to swell and it took 18 months

before

she got the right diagnosis. Everything

changed; she had to drop out of university

where she studied law and lost her job,

having to move far away from family

in Western Uganda to Kampala so that

medical treatments were more

accessible -

while they were still costly despite

government subsidies. Quiet at home,

yet graceful in all she does,

this woman - who can't stop mentioning

how expensive everything has become -

diligently cleans dishes after a long day

at the hospital for sessions of dialysis

treatment as

if nothing's wrong, other than an

inconvenient cast on one arm

I feel like a-burden:

After returning from the hospital, I go home to relax
because the
whole body needs time to recuperate. Afterwards,
I do some housework around my place
and try to stay active, she says. Ms Twongyeirwe
earns a little money
each week by asking friends and family for donations
so that she can afford her monthly
kidney treatments.
She has also tried asking her extended family
members
if anyone would be willing to donate one of their
kidneys so that her situation could improve
even more - but alas, nobody stepped up for this
noble cause.

She said her cousin was willing to donate her womb—
until they suddenly backed out.
Even if that offer had stayed, Ms Twongyeirwe would
still have needed more money
and approval from the medical authorities before
she could travel abroad for an operation.
But if the law is passed then at least one hurdle
will be eliminated.



Uganda will soon join an elite group of African nations, including South Africa, Tunisia
and Kenya, that allow both the necessary regulation and medical resources for_
organ transplants to occur domestically. At the moment India and Turkey are most popular_
destinations for Ugandan kidney transplant patients. Relatives can only donate when-
given permission by Uganda's Medical Board—to prevent issues related to coercion
and trafficking from occurring. However, once parliament approves the new
measure passed down from Prime Minister Bobi Wine, this tedious process should become
less cumbersome (perhaps in some cases free) than previous measures; with total costs
coming out to about $8,000 USD.

Those supporting it say Uganda needs special legislation to create a safe framework

under strict regulation to make sure there

is no abuse. The proposal includes the

creation

of a national waiting list of organ

recipients as well as the establishment

of specialised transplant

centers around the country.

An operating theatre has already been

set up at the

main national hospital in Mulago,

Kampala. Organ banks will also be

created for those

who want to donate - and not just for

kidneys.

We are [also] thinking of corneal

transplants for the eyes [and] skin banks

for patients

who have burns, says Dr-Fualal Jane

Odubu,-chairperson of the,,

Uganda Medical Board,,



About a hundred Ugandan healthcare
workers have already received training
abroad, many

of them focusing on how to carry out

kidney transplants. However, there will

still be a waiting list

and the need to raise funds. As hopeful as

all this sounds, Lisa Twongyeirwe knows

that

they're in for an uphill battle. Despair

isn't far from anyone's mind. She holds

back her own tears

while recounting one of their members

who tragically passed away recently -

it took everyone else

with him.


For her, the new legislation could be

transformative. Patients who need

transplants will now be able

to receive them - helping them lead full

lives again - because they will no longer

worry about

having to leave or travel abroad due to

lack of donors domestically.

Donating a kidney is basically giving

someone else your second chance at life,

she said. Some people are afraid that

they'll incur all the costs of going

overseas while also

running the risk of arriving only to find

out that the donor has changed their

mind.




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